SZwanetz
bleunote's Cancer Blog
September 12, 2008
| Day 5 - The Pain! | Views: 714 |
Friday – Day 5
OMG! Everything hurts! The muscles in my neck, the bones in the back of my neck, my skin, my legs. What’s happening to me?The shots they having me take to rebuild my white blood count are so painful on my body. They knock me out and when I wake up I feel like I was beat with a baseball bat. The muscles under my chin hurt to the touch. When I touch my skin it feels like it would hurt to swallow, but thank GOD it doesn’t.
I have been trying to pour liquids down, but I am so tired. Nothing tastes good. I can’t taste anything. Not hot stuff, sour stuff, nadda. I’ve been getting an Ensure down each day to boost my energy, but God, THIS IS HOLY HELL!
My body gets red and blotchy, but I don’t have a fever. Sometimes I look sunburnt for a while and then it goes away. I don’t want to play this game anymore!
To sleep per chance to dream!
Thanks for your support -
I’m sorry to hear this. Neulasta hit me much the same way and I damn sure didn’t want to go in for the last of the shots. I hope they gave you some kind of medication for the pain as that’s really all that got me through it. I slept on my couch for weeks at a time because I couldn’t drag myself up stairs. I hate to recall the agony you’re going through and wish you the best of luck getting through it.
Thank you for making me feel less crazy! OMG! The Pain! It hurts so bad. To think I have to take 6 shots in a row after each treatment – 4X treatments!
What type of pain meds did you take. You are talking to a person that never even takes an asprin, but at this point I’ll take anything!
It was my second bout of chemo that I was given the neulasta. My doctor pretty much gave me an open ended prescription for Vicodin. Different people react differently to different pain meds. Your best bet is to give your doctor the third degree next time and get something to help you.
Sonia,
Don’t feel bad for being tired. Chemotherapy and everything associated with it is barbaric! I can’t wait for the day when we won’t have to go through the physical torture to cure ourselves from cancer. I’m happy to hear you’re drinking Ensure. The chocolate ones were the only things I could taste. Are you getting neuropathy? Tingling in your fingers and legs? I had bone pain from the Neulasta shots. It was hard. I think about it only when I read yours and other blogs. I think I’ve mentally and intentionally blocked all of these difficult experiences out of my head. There will come a time also for you when you’ll look back and be amazed that you got yourself through such a tough time. You’ll also be so grateful for your family and friends who helped you through it all. Don’t shy away from letting people help you. It was always a hard thing for me to accept other people’s offers to clean my house, pick up groceries, bring over dinners… But now I cherish these people in my life so much more than I ever would have before cancer. I hope your pain quickly passes. Take care and keep drinking those Ensures!
Thank you for your input. I just dread taking another one of these shots. I have to take 6. After each of my 4 Chemo treatments 6 of these hellish shots. I am on my 5th one today and I’d rather die than take another one. Everytime I take one, my body pain increases so much. I have gained 7 lbs and I am not sure why? Could it be water weight, new bone mass? My clothes fit the same- it’s so weird.
Hi, Sonia.
The body ache has been terrible for me, too. It is more like bone pain or join pain? It hurts everywhere in my body. A simple thing like lifing my arm to pick up something or walking to my kitchen was hard and painful. I called my doctora few times about the bone pain, and she kept telling me to take Tylenol and it should work. Is she crazy? Tylenol does not do Jack with these pain! The good thing is pain is going away and I feel that I am recovering from my battle 1 now. You have 4 more to go? I know, the mere thought of having this all over again for next 4, 5 times is just a nightmare… Please know that I am experiencing what you’re experiencing now, we are in it together!
Yuyu
Yuyu,
Are you taking the shots as well. I think these shots are going to kill me. I am in so much pain. My skin hurts. My throat hurts. I feel somewhat out of breath. Does your skin hurt? God, I Freckin HATE CANCER!
And your right – TYLENOL doesn’t do JACK!
Sonia,
I only had one shot, Neulasta, a day after chemo. I think it is the same thing as Neupogin, but I only had to take it once. Sonia, I don’t think you should be suffering from so much pain. I know that these shots do have side effects of body pain, but you should not endure so much pain. You had enough! Have you talked to your doctor? Can you ask your doctor that you are not going to tolerate any more pain and side effects, and they have to do something about it? Maybe you can also get Neulasta so that at least you don’t have to have shots for a week vs. one time? I hope things will get easier very soon for you. I saw your post somewhere about friends in times of our hardships. I am experiecing the similar situation. There are people in my life who have stepped up unexpectedly and surprisingly to help me. I am so grateful for them. Then, a few that I thought I can definitely count on for help have not shown much wilingness to help. I feel hurt. I know they have no obligation to help and support me, but I feel disappointed and angry to certain degree. I think these feelngs added to my dark depression on first few days of my chemo. I felt really alone.
You know my number, please call me whenever you feel like. I am praying that your side effects will go awaq very soon.
((hugs))
Yuyu
Yuyu,
I am going to the Dr. at 3:45pm today to get checked out. The Hospital has a private room for Chemo patients on the weekends and there is an Oncologist there. Since I gained 7lbs in 5 days and my breathing is shallow at times he wants to check me out. Hopefully I will feel better soon. If I am up for it I will call you when I get in after the Dr’s.
Sonia,
You need to ask your doctor about the symptoms. You may be having an allergic reaction to something. I suffered aches and pains from Neulasta but they were better with a heating pad and Tylenol. I did not get out of bed for days. In addition, I have terrible eczema that flared up during chemotherapy. However, it was easy to treat. I hope you start feeling better and the doctors can get your symptoms under control.
Melissa
Heating pad, that explains why it was in the downstairs closet. It really is amazing that everything is blocked out like that in time as mentioned above. I think back and it’s all just a bad nightmare. The extra weight and breathing problems sure sounds like water weight to me. I was always on diuretics during chemo because of all the water I was retaining.
Keeping you in thought and prayer Sonia. This too shall pass…..Lily
Thank you all so much.
Good Mornin’ Sonia…
I hope you are having a good morning, anyways. How did your Dr. appt. go? I have been reading your posts & was really concerned with all the pain you were having.
I am on what they call “agressive observation”, I have CT scans every 3 months for the next two years. If at anytime something (cancer) shows up, I will have to have chemo. I am scared…very scared. Reading what you are going through darn near throws me into a full panic attack!
You are in my thoughts & prayers! I hope your pain is subsiding…
Monica
I am praying for you…it is all I have to offer and it sounds like so little when your suffering is so great.
Mac
Yes I have been there too. hell hath no fury like a dose of chemo. My throat was so raw the doc gave me slip ticture of morphine to help with the pain. All I could get down was luke warm water and even that came back about 10 times faster than it went in. Here’s the thing though don’t forget about the other end while you doing this
You can get so plugged up it feels like lead weight in your gut for long time after it will a problem so don’t let it happen if you can.